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A Heart Set on Living
Accepted manuscript   Open access   Peer reviewed

A Heart Set on Living

Ana Berlin
Journal of Pain and Symptom Management, Vol.51(1), pp.138-140
2016
DOI:
https://doi.org/10.7282/T308678M

Abstract

Quality of life Will to live End-of-life care Terminal care Patient-centered decision-making Patient-centered health care Narrative reflection Poetry and medicine Literature and medicine
Quality of life is a highly subjective element on which to base health care decision-making. This narrative reflection after the death of a family member uses poetry as a prompt to explore themes related to quality of life—including symptom burden, interpersonal relationships in the face of illness, and the will to live. Through penetrating inquiry and reflection, physicians and other care providers can gain insight into the underlying motivations, loyalties, and abilities that lend meaning to patients’ lives and shape attitudes toward death and dying. By better recognizing and appreciating these factors, clinicians can develop patient-centered quality-of-life constructs that empower them to honor patient goals and preferences at the end of life. Physicians are encouraged to explore poetry and other artistic media to help foster the reflective capacity required to deeply understand and faithfully serve patients in this regard.
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Accepted Manuscript Open Access
url
https://dx.doi.org/10.1016/j.jpainsymman.2015.08.009View
Journal of Pain and Symptom Management
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