Abstract
Some evidence suggests that clinicians’ discomfort with diagnostic uncertainty can set the stage for communication by clinicians within the medical interaction that can be perceived by patients as dismissive of their symptoms, the latter of which has been documented extensively in prior work. A remedy for this dismissive communication may be a leveling of clinicians with patients via the transparent communication of their diagnostic uncertainty in the medical interaction. Thus, this paper sought to explore 1) patients’ attitude toward clinicians’ transparent communication of diagnostic uncertainty, and 2) whether clinicians’ transparent communication of diagnostic uncertainty would influence their trust in them. Data were collected via semi-structured interviews with 20 U.S. patients with endometriosis as part of a larger interview study. All 20 participants reported that, upon reflecting on their diagnostic journey, they would have preferred having clinicians communicate their diagnostic uncertainty to them. They commented that such communication would have contributed positively toward their trust in them, particularly because of clinicians’ honesty. With this, participants detailed that they understand and do not expect clinicians to know everything or to be infallible. They also reported that such communication would have allowed for more informed patient decision-making regarding their care, such as whether to seek a second opinion. However, participants noted that communication of diagnostic uncertainty alone would not have been supportive; rather, such communication must be accompanied by further clinical action or responsiveness on the part of the clinician.